Heart of Wisdom Academy

The surgery Monday was a complete success. My baby no longer has a hole in the heart!!!!!!!!!!!!!!!!! I am so thrilled and relieved. There was a complication during the procedure. Instead of the procedure lasting 2 hours it lasted nearly 8! It was a very tough day for all of us. He spent 1 day in ICU and home we went. He is so happy, and looks as if nothing has happened.

So this procedure may or may not fix a lot of the problems he's had lately, but what it will do is decrease the volume in his blood vessels. His enlarged heart will not get any bigger. He won't go into heart failure. He doesn't have excess blood pumping to the right side of the heart. He should start growing. These are all good things.

The procedure may not fix the lungs, which has been the source of most of his problems. Time will tell.

A new problem was discovered during the course of the procedure, so he's being evaluated by Hematology right now and we'll meet with them sometime in the future. We'll also see Infectious Disease next month.

In other news...my dryer broke :-( How will we go on? God will sustain us like he always done. A family has offered to buy us a dryer. How amazing is that?

The rest of the family is very well. Aside from struggling with wicked thrush and intense fatigue I'm making it too.

I never realized how contradictory the word almost really is. All+Most. They are total opposites. You can't be all and most at the same time. Very deep and convicting!

We're home and everyone is ok. I'm too sick and tired to really post. But we are home and the baby is doing alright. Thanks for your prayers.

It was so nice while it lasted. Good health I mean...We're back in the hospital. The baby started with fever on Sat. and continued to decline. We went to the ER on Mon. He didn't have pneumonia so they sent him home. The fevers continued and he became very lethargic. We had a pulmonology appointment on Tue. During the 4 hours he was there, he didn't wake up and when he did he was very listless. He had another chest x-ray which showed increased vascularity. His blood vessels are swollen because they're working so hard. He needs the surgery in a couple of weeks in order to help him. They won't do the surgery if he has a fever or any other infection.

At Pulmonology she noticed that he wouldn't bend his head down. Fever plus neck stiffness made her increasingly worried. So he had a neck x-ray which they thought revealed an abscess between his spinal cord and his throat. He then got a CT-scan to confirm. During the CT-scan he stopped breathing. They manually gave him air until he started breathing again. The CT-scan didn't show an abscess, but inflammation in the neck. He then got a spinal tap and lots of blood work. So we're here. Please pray that they can find the source of the fevers and that he can have the surgery soon, and that we can all have strength, energy, and faith.

God has answered so many prayers lately, for which I am grateful. The baby is sleeping through the night!!!! That's big. No more nursing every 3-4 hours. And he is eating food!! Very big news. He's eating applesauce, yogurt, ice cream sandwhiches...I'm excited. And he's healthy. He's not sick, not even a little bit. His lungs are totally clear, no cough, no congestion, no nothing. I've been praying for months, and all my prayers were answered at the same time. Thank you God.